Our Mission

Founded by parents, Giving Strength is a non-profit organization dedicated to funding research grants while increasing awareness of SELENON-Related myopathy.

Our dedicated team, composed of volunteers, research assistants, and collaborators is unwavering in its mission to advance research efforts toward the development of viable and safe treatments for SELENON-RM.

Currently, Giving Strength is proud to support groundbreaking research at the Beggs Laboratory at Boston Children's Hospital, University of Paris, and Istituto di Ricerche Farmacologiche Mario Negri, all of which are making significant strides in the field. To learn more about the SELENON-RM research these institutions are conducting, please visit our research page.

Through these invaluable partnerships, our organization strives to deepen the understanding of SELENON-Related Myopathy and contribute to the creation of innovative therapeutic solutions, ultimately seeking to improve the quality of life for those affected by this disorder.